tag:blogger.com,1999:blog-2069660946567587305.post2963620625697751484..comments2024-03-19T20:33:55.108-04:00Comments on Food for Dissertating: Adventures in a Brave New World: Myasthenia Gravis UpdateThe Student-turned-Doctorhttp://www.blogger.com/profile/08506070687255989103noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-2069660946567587305.post-6461352043933034462018-12-14T15:38:52.720-05:002018-12-14T15:38:52.720-05:00Wow, your first neurologist was a real jerk; good ...Wow, your first neurologist was a real jerk; good for you for firing him and moving on to a new doctor. The online support group sounds like a helpful resource, and that's great that you sang in the choir! <3Jhttps://www.blogger.com/profile/03551252538323786408noreply@blogger.comtag:blogger.com,1999:blog-2069660946567587305.post-84313289306918367262018-12-11T10:17:11.425-05:002018-12-11T10:17:11.425-05:00Thank you for sharing your update. I'm so sorr...Thank you for sharing your update. I'm so sorry you've been dealing with such an asshole for a doctor. It can be so hard to find someone that you trust and click with and I'm sorry this experience has been so difficult for you. The stress of having a chronic illness is bad enough but to have stress about seeing the person who is supposed to be helping you is just next level awful. <br /><br />I agree with the above poster that you are incredibly courageous and strong. You deal with your illness with such grace and it's amazing to see. What you go through sounds so scary and to feel like people don't believe you or are not more supportive because they do not physically see symptoms is incredibly frustrating<br /><br />Thanks again for keeping us updated and educating us on your illness. If you ever need someone to talk to please don't hesitate to reach out to me! <3Sarah https://www.blogger.com/profile/11492583565520188461noreply@blogger.comtag:blogger.com,1999:blog-2069660946567587305.post-9096893715860103862018-12-10T21:46:06.959-05:002018-12-10T21:46:06.959-05:00He was pretty bad. I liked some things about him i...He was pretty bad. I liked some things about him in the first visit, but afterward things went downhill fast.The Student-turned-Doctorhttps://www.blogger.com/profile/08506070687255989103noreply@blogger.comtag:blogger.com,1999:blog-2069660946567587305.post-34486484517798088062018-12-09T23:02:07.752-05:002018-12-09T23:02:07.752-05:00I am sorry that your first doctor was such a basta...I am sorry that your first doctor was such a bastard, he sounds horrible. I am quite shocked at some of those things he said. Taking control and looking for a new doctor is really great, and I hope the new one is good. It is a shame that, as women, we often have to advocate for our health much more than men. <3 <br />Susanhttps://www.blogger.com/profile/05085387707813881571noreply@blogger.comtag:blogger.com,1999:blog-2069660946567587305.post-4199621663145356652018-12-09T20:54:32.526-05:002018-12-09T20:54:32.526-05:00Yes, my friends know, and so do the co-workers wit...Yes, my friends know, and so do the co-workers with whom I work more closely. It's hard for even them to really see or understand, though, because most of what I experience is invisible. Someone I see regularly apologized to me last week for not taking my illness seriously because he couldn't see any evidence of it doing anything. Thanks for your support.The Student-turned-Doctorhttps://www.blogger.com/profile/08506070687255989103noreply@blogger.comtag:blogger.com,1999:blog-2069660946567587305.post-15639552595788071102018-12-09T18:32:28.938-05:002018-12-09T18:32:28.938-05:00Managing chronic illness is courageous in and of i...Managing chronic illness is courageous in and of itself. It took me a long time to give myself that. You are doing a great job, especially this soon post-diagnosis. Do any of your friends know? I would recommend at least telling a few, because having people to share the grief with declines or the joy of improvements does so, so much.Bnoreply@blogger.com